Our Story of Vesicoureteral Reflux

13592588_10208158178490911_4472566793953287990_nI should start off by saying that I am not a medical doctor.  I am a parents that currently went though this.  I would like to share my experience is support of other families going through this.

I thought I would share our story of Vesicoureteral Reflux in our 4-year old daughter.  This all started when she was having fevers with no other symptoms.  We decided to check into this more and found out they were associated with her having UTI’s.  She did not tell us about possibly having a UTI but she had high severs with no other symptoms.

After 2 UTIs with fevers we were refereed to a urologist.  Here is an overview.  We needed to get a Cystourethrogram done to see if her urine was basically going the wrong way.  They put dye into a catheter and complete an X-ray with the contrast material to see where her urine flows.  They then rate the flow at different levels.  During this processes she needed to pee while on the table.  She did not like this test at all.  She cried the entire 20 minutes even though it only hurts when they insert the catheter.  She refused to pee on the table.  So they let her pee in the bathroom and then took some more pictures.  If you are going though this and want to show your child before you go here is a video on the “Voiding CystoUrethoGram Procedure” This is another video for kids.  I have been told that you can use gas during this procedure.  We will do this in the future.

So the results showed that she had a Level 2 and Level 3 reflux, one on each side.  The rating is 1 to 5 with 5 being the worst.  There are three ways to treat this. This video is OLD but shows the three options.  We need to do something because if the UTI infection gets into her kidneys it can create scaring.

1. Low dose antibiotics for life.  Then she will not get a UTI that goes to her kidneys. Also, having her go to the bathroom ever 2 hours, and regular stools.

2. Endoscopic surgery.  This is the one we choose.  The surgeon inserts a tool called a cystoscope into the urethral opening to see inside the bladder. A substance is then injected into the area where the ureter enters the bladder to try to fix the reflux. This requires the use of general anesthesia. The rate of success is usually 80%.

3. That last one involved open surgery and moving the ureters.

We decided to go with endoscopic surgery.  We brought our daughter to the hospital in Danville.  They took really good care of her.  They gave her a liquid medicine to relax.  They also gave her stickers, coloring pages, and let her watch tv.  She got to pick the smell in her mask.  She picked cotton candy.  Then they brought her back.

The procedure took about a half hour.  Then there was a special room just for kids that she woke up in.  They gave her a doll.  She did wake up crying for about 5 minutes like they said she might.  But then she calmed down.

We gave her presents at home and thought the day.  That is mostly what she focused on.  She was not sick afterwards.  By the next day she was playing by normal.

13566254_10208158393176278_731935609_n

We had lots of support from friend and family though this process.  She will continue the low dose antibiotic for 3 more months.  Then we will complete the Cystourethrogram  again to see if it worked.  We will probably try it will gas this time.  If it did not work we can try again or move to another procedure.

So today is the day after her surgery.  She is allowed to get back to swimming already, which she loves to do.

 

Leave a Reply

Your email address will not be published. Required fields are marked *

*

CommentLuv badge